This is the story of my Tank and his journey with a rare disease of a neuroendocrine tumor and updates — on how he hard he is fighting, and how he is getting well again.
As most of you know, we aren’t even half way there yet with specialized testing and hospitalizations.
Although we feel beyond blessed with having employment, our Tank’s treatment and the ongoing cost of time out of work when he is hospitalized or having procedures has started adding up. As one of Tank’s Tribe we are just thankful you are here to join us in this war and appreciate our people.
Thank you all for joining our journey, and we love each and every one of you. Please feel free to share our journey, and know we hope our story will bring more knowledge to rare illnesses in children. As always, live your life hard, but love harder.
— Carrie Florom